Sunday, July 27, 2008

step up

Well we made it through the step up to the next dose ok. It wasn't as bad as we figured which is a good thing. Im just surprised at the overwhelming tired. all i wanna do is sleep. the nurse from www.mslifelines.com which are the makers and supporters of this poison I mean med I have to inject 3 x weekly into various places of my anatomy, called and gave me some helpful information. I had been using ice before the shot (what they told me to do...) but obviously that wasn't workin for me because i get these baseball size knots and bruised places that look like I got beat. SO she told me try heat after and do deep massage for 2 to 3 minutes to disperse the med. OK.
so it doesn't look but like a golf ball size welp now but hey. I will take that over the other one.
AL so she told me to take the anti nausea med and the aleeve before I take the shot so it is in my system ok. tried that and I didn't throw up near as much. It was beginning to look like the set from exorcist for a while here.
Im just glad that is over. We have 5 more at the 22 mcg then move up to 44 mcg. and then we are on that one for the long haul. so just getting through this rough part is the key.

I have alot to get me through and lots to keep fighting for. we had Hannah Montana night here Saturday night as she had her 3d show on Disney. I watched that for about 10 min before nausea set in but Bella loved it. I did take some photos. She was in full outfit wig to guitar to enjoy the show.

She had Vacation bible school before that. her program was on the 20th
the photos didnt turn out so good I was exhausted by the time we got there.
This is her friend Mandalyn they looked so cute.

here she is on stage doing her thang. They had a hawaii theme this year which was just her thing since Nana had just gotten back from Hawaii. she had on her MOOMOO and her flowers in her hair like a true little native girl.





Just some various shots from the Program. Here are some from The Pie in the face. Her teacher Mrs Gloria got the pie in the face. THe kids had to bring money (change) to church and put it in the jar of either Mrs Gloria or the Pastor (His name escapes me right now) well the boys went out collecting I think for him they got all their piggy banks together cuz Mrs Gloria lost and was to get the pie in the face.






Mrs Gloria prepared she had a shower cap on and glasses and a tarp wrapped around her all ready for the pie to hit. THe preacher hit himself with it instead then hit her hahahahahaha so THEY BOTH got the pie in the face. THE KIDS LOVED ITTT! I think the adults did too. It was great fun. SHe was a good sport about it too.
sorry my photos didn't turn out so good. but you get the general idea. THEY HAD FUN AT BIBLE SCHOOL.

I think that is about everything going on right now. Bella is getting ready to go back to school. John is working and Im in bed mostly.
I did have some publications come out with scrapbooking. ONE THAT I HAVE BEEN WAITING A WHILE ON. I will take photos when IM up to it and show you soon.
hope everyone is doing well.

11 comments:

Colette Bate said...

Oh my goodness, girl ... the cure sounds WORSE than the ailment! There are no words that could adequately describe how sympathetic I am to the horror you are enduring right now. I just wish there was something else that you could do. I'm missing the loud, rowdy, in-your-face gal from the spring. And, I miss seeing your fabulous pages.

Just know your in my heart ... and in my prayers, hon. It's a cliche', I know .... but, hang in there best you can.

Hugs!

Jocelyn said...

Yeah so glad to hear that you re up and around a little more that the last few weeks. Amazing what these poisons will do. Take this get sicker and maybe you will get better. I am in your cheering section, hollering GO NANCY! My thoughts and prayers are with you and your family!

chelemom said...

You poor thing! You are so amazing with having such a bright outlook! Can't wait to see your pubbed LO's! I look for your name all the time now! I need some advice on getting published!

DebW said...

Glad you got to get to the presentation! Hope that the side effects begin to subside and you can be vertical and maybe get some scrappin done and spend more time with Bella & John! How's Guido doing?

Patti Smith said...

Colette puts everything in words so well so I will just say ditto and that I'm thinking of you and praying for you everyday. Those pictures of Bella are just so cute. We were in Florida and my granddaughter had on that stuff and I thought of Bella and her guitar!! BIG HUGS TO YOU NANCY...

Lynnise said...

Oh sheesh, vomiting is about the WORST thing I can thing of, Yuck, yuck, yuck, I'm so sorry:( I hope it all levels off and quick!! I'm so glad you have that beautiful little bright spot in your life named Bella and boy is she a doozy- absolutely adorable!

Get well, friend, I hate that you are suffering so.

Athene said...

My dear Nancy-I am in your corner praying for you daily! I hope things improve. Time will only tell! Keep up the faith and know that so many people love you and are waiting for our sweet and sassy Nancy to return! Take care of yourself and give that darling Bella a hug from me! She is quite the character-just like her momma!!! Great big hugs from ME!!!

Pearl said...

Hey Nancy !

Just to let you know I am thinking of you & your family !

& that things will get better for you to be back up on your feet & enjoying some of the things you love !

Hang in there , ole pal !

Hugs,

Sasha said...

Beatutiful pics and you GOT IT GIRL you can do it

Lynn said...

so glad to hear from you and things are moving along. daaangg. you are so in my prayers. bella is adorable as usual. can't wait til you're back up to speed. miss you. smoochies.

It's Just me...Crazy "T" said...

Hey gal.. just checking in on you to say that I am still here and praying for you... I hope that you can start feeling some relief soon from the shots and until then stay strong and know that you are loved.
Congrats on the pub too gal.. awesome news!!!
lol
T