Thursday, March 27, 2008

Not a good day....

I had a dr appt this morning and I didnt get good news.
My Gp told me to kinda prepare myself. That I do have lesions on my brain and a postive lumbar puncture. The vasculitis in my brain and that point to what we were hoping not. Multiple sclerosis. The other thing it could be is Lupus nephritis vasculitis which means the lupus has moved to my brain. So. I have an appt, on April 9th that I will get more confirmation and treatment options. I have a new rheumatologist since this one was a nightmare that I will be seeing errrr. first week in May. (its in the kitchen and IM exhausted) Regardless... He told me to prepare myself and whatever questions and alternatives for treatment we can choose. I am not sure what we can do on second opinions (I REALLY DONT WANT TO DO ANOTHER SPINAL TAP) But I did have positive Ana and really high sed rates. I dont know all the counts I didnt write them down I was kinda in a stuper because so many times before they tested me for that and it was always negative. So anyway. that is where we stand right now. I really do appreciate your prayers and thank you so much. I ask right now for you to pray for John and Bella and my family. I think this is alot harder on them than it is on me.
My main concern right now is how this is all gonna effect them.

32 comments:

Angela said...

Nancy I am praying for you and your family. I am praying for healing, for strength, for positive thoughts, for excellent doctors, for successful treatment...and the list goes on. I will continue to pray and will add you to my prayer chains.

Keep your head up, keep positive thoughts and remember that there is a whole big, huge group who love you and are praying for you!!

Blessings,

Lynn said...

you and your family are in my prayers.

Braxton's Mommy said...

Yall are in my prayers!! You are such a stong woman. And you inspire me daily!! THANKS!!

Dawn said...

Nancy,
I am praying for you and your family. you are such a strong woman and a light to so many. I am so glad to know you. Hugs hugs!

Jacinda said...

Ohhh, Nancy....I don't know what to say. You are so definitely in my prayers my friend, as are John and Bella.

xoxoxoxoxoxo

Julie said...

Damn it Nancy, this is not what I wanted to hear! You KNOW I am going to keep you all in my prayers...you, John, Bella and your extended family. I am praying that God will give the dr's the knowledge and the power to fight this with everything they have! You are such an amazing woman!! And I know you have tons of fight in you! ((huge hugs))

Joanne Bain said...

Girl you know I love you to bits!!! I will keep all of you in my thoughts and if you need to anything just call!!
Joanne
xx

Brigitte aka Scrappassie said...

I am so sorry for you .... Will keep you in my thoughts, light you a candle, please don't loose hope !
hugs
BrigittevT

Beth said...

Nancy ,
Sweetie Im sending love, hugs and prayers .I sure pray that whichever it is that it's as bad as its gonna get , My Aunt had MS and it was pretty slow in the progress but I don't know that much about it I have heard there are different kinds of it. I so wish I could be there for you or do something but prayer is the top line for all of us ..God is true to his word, lean on him. your family is in my prayers also...big hugs

Wendy said...

Girl you know we have been praying and will continue to. My BFF has MS and I know more about it than I wanna know, but like her, if this is what you have on top of everything else you can fight. You mean the world to me and I always get inspired by you. You know if there is anything I can do for you I will just call and I will be there in no time. Love ya!!

DebW said...

Saying prayers for all of you. I will pray that you will remain strong and can get the MS into dormancy. Email me if you need anything!!
Love ya girl!

SusieScrapper said...

You and your family are in my prayers! My thoughts are with all of you and pray to give you all the strength to deal with whatever comes along.

{{{Hugs to all of you}}}


Susie

Ki said...

Oh Nancy, I am so sorry you didn't get better news. I will continue to pray for you and your hubby and Bella. You are constantly in my thoughts and I wish and pray for some good news from this next appointment. Wish I lived closer to you so that I could give you hug in person. ((((HUGS))))

Tammy Gray said...

You are quite a strong person and you were dealing with these before the dx so I know you will be amazing following the dx. I know it is so hard for all of you. I will keep praying.

Dawn said...

Praying for you Nancy. Keep positive.

chronic chick said...

My heart goes out to you. The lupus sure has its way of turning our lives upside down. I think we should be paid to have tests....
THe hell our loved ones go through is unreal... I wish it was easier on us all. Lupus is so much like a lion in hidding. I've been fight with D levels for over a yr and can't get them up... let alone the other nightmares of a poosoble biopsy in JUne

Chris said...

Nancy you are in my heart and my prayers. MS.....my sister was diagnosed a few years ago with it in her early 30's and I know what it means. With everything else you deal with I have no words to say but to let you know that I am thinking of you way over here in the land downunder and will be praying for you, John and Bella. Hugs to you and your family and know that we love you! xoxo

karen (akaliz) said...

oh, nancy...be certain you are in my prayers each day, you, John and your sweet little Bella. stay strong!

Pearl said...

O Nancy !


I had no idea, grrl ! Indeed your strength & sweetness & joy of life is such an inspiration to me ! You are an overcomer !

Only glad to say , rather sheepishly, that I've sent you snail mail today . Hope it gets there within 7-12 days as they said at the post office !

Praying for you & your sweet family !

(((((((((((((((((hugs))))))))))))) Pearl

SpAzzGiRL said...

be strong girl...I have faith that your spirit and will is stronger than any of that nonsense!
You guys are always in our thoughts, me and that kid.

Armina said...

Nancy, be strong and never loose hope.. God is we you and so our prayers to your and your family...

{{sending you hugs from miles away}}


Armina

scrappermimi said...

Hope your new doctor brings better news and treatment options! Your in my thoughts and prayers!

Paper Propaganda said...

I'm so sorry to hear that, I'm thinking about you!

xo swiss said...

You are definitely in my thoughts.. You know what everybody says about positive thoughts.

Annette said...

You are and your family are in my thoughts and prayers! I'm here for ya! Let me know what I can do to help out!! Love you!

noelmignon said...

Hugs, prayers, love, thoughts....all coming to you and the family from me and my family.

kate said...

OH GIRL!!!! This just breaks my heart. I believe in your strength!!! I'll be doing lots of praying for you and your family. And I will be yelling and screaming and being mad right along with you!!! You are not alone dear friend. I am always here for you!!! Let it out at me anytime you have a need!!!! Big Big hugs to ya!!!! Kate

Samantha Wales said...

Nancy as always you and John and Bella and your Mom are in my prayers. Please let me know if I can do anything. Stay Strong and have faith.

Becky said...

I will keep you guys in my prayers each and every day. You are such an amazing fighter and I look up to your strength as you have went thru so many ups and downs. Hang in there darlin. Lots of people are praying for you

Cheryl Wray said...

I am still praying for your health. Praying that the doctors will give you some good options!!

Keep positive. That is so important!!

Hope you have a good day today!!

Lynnise said...

Oh shoot, Nancy, I don't know much about Lupus or pretty much anything you were saying in your post, but this sounds really scary to me. I'll be praying for you. I'm so very sorry for you and your beautiful little family. Big hugs!

Angel said...

Nancy, healing prayers & hugs to you! I am tagging you, invitation on my blog... play if you like!
Hope you have a good week ! : )