Friday, February 29, 2008

im home

I got to come home today.All we really know is I have vasculitis on my brain (fancy word for the blood vessels are swoll up) and I have these white and werid looking lesions on my brain,,, no stroke no aneurisyms thought just lesions but these can happen with lupus when you get brain involvment we have been praying this would never happen. my spinal tap came b ack clean so that was a blessing. They sent off my scans of my brain to get another look at them before they make a final diagnosis Yeah they are thinkign it is someting else to go along with all this other crapp but IM NOT even gonna say cuz If I say it ...it migt betrue and i dont dare wantt his to be true, Ic ant imagine. anyway I passed a freakin kidney stone in the mri machine.This little dude couldnt speak englishe and I was wavin my foot at hima nd he was saying wat wong wiff U I said GET ME OUT i need to p HE SAI i ALMOS FRU i SAID well you gon ahve to wai tim passing a kidney stone HE SAID WAHT i SAID rock comin out my buttt dude HANG YOURSELF ON FOR A FEW. SO A FEW MINUTES OF SCREAMING AND BLOOD I GOT IT OUT i TOLD HIM YOU NEED A CLEAN UP IN THERE CUZ I TRIED. HEWAS SO CONFUSED. I TOLD HIM iM OK NOW STICK ME BACK IN THERE SO HE WAS LIKE OOOOK. HE SAID you have a BABY? I siad NO A ROCK. he was so confused. finallyh someoen explained to him and he said OH no wonder your little button didnt work I said I KNOW THIS THAT IS HWY I WAS WAVIN MY FOOT AT YOU, dummy anyway... im sure i left an impression on him...

Im really tired and sorewhere they did the spinal tap hurts hurts hurts but other than that I think im gonna be ok. I can feel the left side of m face more than i did going in so that is good It still feels weird and m legs and feet feel weird. but i can feel them so That makes me happy. THANK YOU ALL SOOOOO MUCH FOR THE PRAYRES.
we will know in 3 weeks more about this so Im gonna have to keep my mind off this or I will go nuts...seems liek a good time to get those pages scrapped I wanna get done for bella. My mom is here she can help tell me who these peopel are kwim. so Im gonna get on that some gtomorrow as I can do it.
Thank you all SOOOOOOOO very much You dont know how much i appreciate it. esp John as well he is so upset and worried whent he dr said what he thought this ws he just dropped and said NOPE we are nto doing this it cant be tat we wont accept that so there ya go. I just right now feel bad for bELLA SHE has no idea I just pray it is something fixable. and we finally find out what caused it and make it go away I hate not being able to hold my little girl cuz it hurts.tank you again
love
me

21 comments:

Di Hickman said...

So happy you're home! And that you're getting better! Continued hugs and support! here if you need me!
Love ya!

jan williams said...

We can get through this!!!!!!! And we will get through it!!!!!!

Betty said...

Nancy you have been in my tought and in my prayers every single day.
I understand all that you want to do for Bella because the reason to scrapbook for me is my 4 year old girl as well. Keep it up, you can do it.
I am going to keep praying for you and your family

LFA said...

Hey Nancy ... I wanted to say hi and let you know I've been thinking about you and sending good thoughts and vibes your way.

Also ... and I hope this will tickle you ... I may have to create a new thread / category in the message boards for people with lupus who scrapbook. I had no idea. :-)

I keep finding these folks and I keep sending them your way. :-)

I will catch up with you soon. All my best, Wick

scrappinsam said...

Glad your home and sending prayers and hugs your way!

Amanda Ann said...

You are in my thoughts and prayers!!!

Amanda Ann said...
This comment has been removed by the author.
SpAzzGiRL said...

glad to hear you are home safe and sound. Hopefully you will be back to "normal" real soon...nancy normal, just the way we love ya!

Cami said...

So glad you're home. Be strong girl! You, your family and your doctors will remain in my prayers. (((((HUGS)))))

The Untamed Scrapper said...

I"m so glad they let you come home hon. This has got to be so tough but I know the Lord will get everyone through this.

More prayers coming your way, for you, John, Bella and your momma, heck everyone.

You've touched so many many people Nancy. I know that He's hearing all our prayers and is gonna take care of you!

Big hugs!!
Scrap on!

Gaspegirl said...

Nancy you are still on my prayer list and I will keep you there! Praying for your strength and healing girl!! (((HUGS)))

Leslie Ashe said...

Nancy, I LOVE you girl! :) You WILL fight and WIN! You've got to be one of the strongest people I know. I am SO glad you're in your comfy home with your sweet family. Give miss Bella a hug and kiss from me :)
You too...hug yourself from me...!!

Sassette said...

Oh Nancy, I am so very sorry to hear that you condition has worsened. I have been out of touch with you for some time now, but have always asked whoever I found online how you were doing. You are in my thoughts and prayers girl. I pray that John will have the strength that is needed to help you get through this and to tend to Bella during these trying times. I pray for your mother that she is able to be there for you and help to ease the burden for you. I pray for Bella that she has the strength of understanding and knowledge of knowing how very much her MOMMA loves her and how much you want the best for her, that she will see all of the beautiful albums you have created and know that she truly was everything to you.
Most of all hon, I pray for you to have the strength to be brave, to do what you need to do, and to have a full recovery. Please keep the faith, and know that you have touched many people's lives and you are truly very special to many people.
LOVE and HUGS girl!!!!

cpbunch said...

so glad you are home Nancy! I know I don't know you that well but your story has really touched me. You are one strong lady and are very much admired. HUGS!

Jessi Gribbin said...

Sweety! I am so glad you're home. You are a fighter, and I know you're gonna get through this. WE will continue to pray and send happy and healing thoughts your way. Love ya girly!!!

Kim - ScrapToMyLu said...

I'm glad you are home at least! I hope you have some heavy duty healing. Stay postive, stay strong.

Jana said...

Oh man, hang in there girl, stay strong and think positive. You've already been through so much so keep being tough and know we're all here rooting and praying for you!!

Lucy Chesna said...

you are in my prayers ...hugs to your family

~dawne said...

Hey Girlie....so glad you're home. I'm praying for you girl....hang in there!!

noelmignon said...

Ooooh Nancy...I'm so glad your home! I have been thinking of you, hoping your feeling ok!

HUGS!!

Cheryl Wray said...

We are all just gonna pray that they can help you through this current problem and fix you up!!! I am praying for you!!!

And I can't believe you passed a kidney stone while there. Ugh...

{Hugs and prayers!!!!}

Stay strong and positive! God's not finished with you yet!